Saturday, June 4, 2016

Where have I been???


I looked at my blog the other night and realized I hadn't blogged in 7 months.  I've kept photos going, but I just haven't blogged them.  This wasn't a conscious decision, but after really thinking about it, hrere's why.

1.  As a long term TSW blogger, there is a sense of hope you feel you need to pass on to fellow readers.  I spent a LOT of my time in the early  hell months reading bloggers who were doing SO much better and their positive posts were just so inspiring.  I would say "Wow!  They are healing SO well at 14 months, I can do that!"  Well, over the last several months, there's really no progress to report.  In fact, it's either been a slow decline or stagnant crap.   I can put makeup on and without drawing attention and can go about  my life, but my face looks a bit swollen and pretty wrinkly still.  I look puffy.  I have gone on living my life, but there is DAILY pain.  Daily reactions to EVERYTHING.  Daily flares from something.  Daily grief from TSW.  ALL showers are still exhausting and I have to ice myself after every single one of them.  When I tell my 6 year old daughter that I need to take a shower really quickly, the first thing she says is "do you need to icepack?"  Seriously?  This motherf***ing disease is still dictating my life.  I am still in bondage over this bullcrap.    I recover much faster, but it's still an ordeal in month 28.  

2.  I'm back to living my life.  I am back to working (photography) so all my computer time is spent editing.  I don't really have time to dedicate to the blog.  And when it's just a reminder that things are still crappy, there's not really a desire to take time for it.

Anyway, sorry for the absence.  I am still not totally caught up, but I'll get caught up when I have time....

Thanks for following.

10 comments:

  1. Thanks so much for keeping us updated. I've been checking in on your blog periodically. I'm in month 25 and it still sucks big time. Happy healing and I hope you'll turn a corner real soon! :)

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    1. Still one of the best sites around to follow the ravages of TSW and the excruciating healing process. Your pics are still appreciated. Sad to see the so many of the comments here are just nonsense trying to promote their own web sites likely for personal gain. Hope your still hanging in there.

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  2. Hi Jen! Just wanted to let you know how much I love reading your blog, going back through all the posts and tracking your journey. I'm heartened and inspired to see that you have made such dramatic progress through these couple of years and back at work!

    I have also started my own website to share some related information and raise public awareness of eczema, and have included your blog in my list of favourite eczema blogs that I follow, do check it out here: http://eczemacreamhub.com/eczema-blogs-follow/

    Continue to be awesome Jen!

    Best Regards
    Colin

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  3. Hello Jen. I'll get right to the point. You have severe nutritional deficiencies. It's hard for me to read about people who are still suffering with eczema and to see your pictures. I had eczema every bit as bad (and worse). There were long periods of my life when I looked like an absolute monster and could not leave my house. God healed me of eczema and I know exactly what you need to do. I wish I could scream it from the mountain tops and make people listen. I know from experience that the problem is 'WHAT DO YOU BELIEVE?' So much information out there; tried so many things and still the same. When I was first introduced to the internet, I'd spend many hours reading about eczema and what others had to say in the comments sections. I tried nearly everything and nothing helped. Now, when I see advertisements for steroid creams with terrible side effects; and hear stories about how others are suffering; I shake my head and want to scream, "NO! I have an answer." Those same websites that I would consistently browse looking for a cure, I'm now going back to spread the word to everyone I can that there is an answer for eczema. You can be healed. The only way that I know to get the information out is to put it online. My website is very new, so it won't come up in a google search yet. please type in the address bar: www.howtohealeczema.com If you take time to read it in its entirety and do what it says, your life will change. I was once you. So PLEASE DO NOT IGNORE WHAT IS WRITTEN ON THE WEBSITE. In no time at all you'll have your life back, and those days and years of coping with the misery of eczema will be just a memory. God Bless You

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  4. Hi Jen
    That's the longest I ever heard of topical steroid withdrawal going on. Though you probably are tired of people giving you suggestions like watching Christian TV, etc. :-) A few of the things I did to clear my eczema were:
    -remove cow dairy, red meat, sugar and alcohol from my diet.
    -started having a tablespoon of fish oil in the morning to moisturize my skin from the inside out.
    -My naturopath did a test and discovered I don't have the ability to methylate or process regular versions of vitamin B in food or supplements so now I take an activated versions of both: vitamin B 6 (PCP50) and B12 methylcobalamin.
    -I learned to do restorative yoga poses to calm my nervous system
    -the best all natural topical moisturizer i found that will immediately reduce the red swelling is actually a high concentrate balm made in the UK from humanely raised Nile crocodiles. Studies have shown there's something in crocodiles that acts like an antibiotic because they fight in dirty rivers in the wild but somehow never get infections. The 25 ml. size is enough to use to see if it works. It's only of the only substances that has Omega 3, 6, 7 and 9 in it which are what the skin needs to heal. www.repcillin.fr
    Hope that helps
    Michael

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    1. Thanks for the advice! I did all but the MTHFR testing. Literally have the reptile stuff haha. I'm surprised that you haven't heard Of more long term TSW. I suppose it's because people either heal or throw in the towel. A lot of the main faces in TSW Are like 5 years and still flaring.

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  5. I have purchased Dermalmd Serum. I have eczema from using this serum a few years ago and I can see the difference. A lot of areas are clear now and look normal. Will continue to use Dermalmd Serum.

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  6. My husband suffers from eczema and has been using foderma serum twice a day. It took him 3 weeks to try it because he is very traditional and stubborn and thinks that oatmeal cures all. Even though it never cured his eczema. He humbly admitted that his eczema is gone!!! He'll never switch and the Mrs. has new cred.

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  7. HI Jen,
    I just have been reading through your blog, but I am wondering - did you end up going back on steroids? I thought I saw you on a Dr Aron site.

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  8. I have Eczema extremely bad on the top of my right foot & Foderma serum has improved it so much. Although, it’s not completely gone the itching & flakiness has subsided. Just happened to find Foderma serum while searching for the previous prescription I had. Would most definitely buy again & refer others.

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