Month 8

(10/1/2014 -10/31/2014)   
(Day 215- Day 245)



******** WARNING GRAPHIC PHOTOS *********


Right now, it's the first day of my 9th month and I am ringing it in at 5:41, awake after waking up scratching from useless, dry, think skin on my neck.  It feels like the skin of a rotisserie chicken.   You know, the kind that is so crispy it kind of just breaks off.  That's my skin on my chin, neck, chest, and arms.

The first flare I had was so bad that I really thought that was as far as it would spread.  I never imagined my arms and hands would be getting WORSE in my 8th month.  I never imagined I'd be home bound again with no energy to go out and skin so bad I don't want to face anything.

As far as my emotional state, I'm doing pretty well.  Just letting people help me.  However, it still hurts and really sucks to have this be my face.  To have this be my skin.  It's really awful and upsetting, to I avoid mirrors.  I'm starting to test out supplements and other foods, too.  My gut is still crazy off.  I drank a green drink today that had probiotics in it and my body went haywire!  Sweating, smelling... BLECH.  I have no idea what the heck is still going on.  Maybe bacteria or yeast... Who knows.

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My skin is SO dry.  I can't even describe it.  Like nothing I've ever experienced.  My skin has no elasticity.  It wrinkles like I'm 80.


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To look at this in the mirror and know it's you, makes a person pretty bitter and angry.


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My arms are getting worse and spreading.  This disease is AWFUL.



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My mother in law brought me flowers... :)


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And she said I looked normal haha


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Day 243
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Stephanie, a TSW mom, got me these slippers with a gift package of amazing and wonderful products to sample!!  Her easy link is below and it is AMAZING stuff.  


AWESOME TSW skin products!! --->>The Home Apothecary 


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I look like a baked chicken.


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3 comments:

  1. Idea of opting for Green supplements and drinks is absolutely great dear. I am sure it will help you. I also suffer from many skin problems and trust me it really sucks. But people like you are my inspiration.

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  2. Just wanted to post but I am on Month 8 too and I am facing almost exactly what you are facing through these photos. Super dry neck, cuts on the hands and neck.. full body flare. My history of usage is similar to yours too with about 10-20 years use of light steroids and 5 years of super strong steroid use.

    Seeing that you are doing so much better in month 10 and 12, I feel a lot more optimistic.

    You are very strong for posting and sharing these photos to the public.

    Thank you.

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  3. Thank you for your photos. gives me courage to get through another day. Month 8 is what I googled and this came up. I crave moisturizer and go back to it and then have a bad flare. Skin is dry and flaky and I look terrible. Hair fell out and bad eczema on scalp.
    Only relief: Bentonite Liquid Clay for itch/ ecdermaid spray from Merry Clinic in CA.
    It has silver in it and just helps sooth dryness and itch, not a miracle, but some relief.... I need it though.

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