Saturday, June 4, 2016

Where have I been???


I looked at my blog the other night and realized I hadn't blogged in 7 months.  I've kept photos going, but I just haven't blogged them.  This wasn't a conscious decision, but after really thinking about it, hrere's why.

1.  As a long term TSW blogger, there is a sense of hope you feel you need to pass on to fellow readers.  I spent a LOT of my time in the early  hell months reading bloggers who were doing SO much better and their positive posts were just so inspiring.  I would say "Wow!  They are healing SO well at 14 months, I can do that!"  Well, over the last several months, there's really no progress to report.  In fact, it's either been a slow decline or stagnant crap.   I can put makeup on and without drawing attention and can go about  my life, but my face looks a bit swollen and pretty wrinkly still.  I look puffy.  I have gone on living my life, but there is DAILY pain.  Daily reactions to EVERYTHING.  Daily flares from something.  Daily grief from TSW.  ALL showers are still exhausting and I have to ice myself after every single one of them.  When I tell my 6 year old daughter that I need to take a shower really quickly, the first thing she says is "do you need to icepack?"  Seriously?  This motherf***ing disease is still dictating my life.  I am still in bondage over this bullcrap.    I recover much faster, but it's still an ordeal in month 28.  

2.  I'm back to living my life.  I am back to working (photography) so all my computer time is spent editing.  I don't really have time to dedicate to the blog.  And when it's just a reminder that things are still crappy, there's not really a desire to take time for it.

Anyway, sorry for the absence.  I am still not totally caught up, but I'll get caught up when I have time....

Thanks for following.

Day 762 - Day 791 Topical Steroid Withdrawal Month 26


(4/1/2016 - 4/30/2016)
(Day 762 - Day 791)



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