So, Month 12 so far has been pretty stable, but I still flare. The flares aren't epic, they're small, and I heal quite quickly from them, but they're still uncomfortable and irritating. I can shower, apply moisturizer and makeup, and I still look pretty normal. The showers FEEL AMAZING. I've even had some days this month where I don't really need makeup or moisturizer and I looked pretty darn normal! BUT, there were days were I was SO dry and my skin wouldn't hold moisture for longer than 12 hours. This disease is beyond understanding.
So far this month.....
- I can shower regularly! And they feel amazing! After not showering for the first 10 months this has been an incredible blessing.
- I still have a restricted diet. I dabble with other food but any large amounts result in extreme inflammation and irritation. LOTS of itching.
- Still don't sleep through the night. I sleep about 3-4 hours at a time and can usually go to sleep once I adjust and scratch a little.
- I am LIVING. The flares haven't kept me down, but I've gotten sick both in month 12 and month 11 with an upper respiratory things. Other than that, my skin hasn't stopped me. My husband hasn't had to take time off because of it. It's been good. If I need groceries, I go.... If I need to run an errand, i go. It's been nice.
- I GAINED 10lbs!!!! PRAISE THE LORD! I was scary skinny for a while and felt like leather skin hanging on a skeleton. So thankful to have gained back some weight.
Day 337
So, I think I get dishydrotic eczema on my ears. I would get these awful, painful blisters on my ears that I never knew what they were. I finally came to the consensus that it was dishydrotic eczema. Some people on the Facebook forum said it looked like herpeticum, but it never became out of control. At the same time I got these (which you'll see them change through this post), I also got a very mild cold sore and a weird sore on my nose. So, it could just be "herpes" outbreaks all over, but either way that's what herpeticum is when it's rampant and coupled with infection.
Day 338
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| BEFORE SHOWER AND MAKEUP |
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| AFTER SHOWER AND MAKEUP |
Day 339
Day 342
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| NO MAKEUP!! |
Day 343
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| NO MAKEUP! |
Day 344
Day 345
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| NO MAKEUP |
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| NO MAKEUP |
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| AFTER SHOWER A LITTLE RED |
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| ADD MAKEUP AND VOILA! |
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| SOMETHING MADE ME BREAK OUT ON THE WAY HOME. SOOO ITCHY |
Day 346
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| NO MAKEUP |
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| AFTER SHOWER |
Day 348
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| Woke up swollen |
Day 349
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| SOMETHING SET ME OFF.... THE BEGINNING OF A FLARE. |
Day 350
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| Randomly got hives on my upper lip. |
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| My lips randomly flared... itching and oozing. |
Day 351
Post flare DRYNESS. Hoping that after a shower and moisturizer tomorrow, I'll be back to how I was.
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| Add caption |
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| THIS HURTS. No clue why this happened, but it just randomly started itching SO badly. |
Hey Jen,
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If so, I can mail the product to your preferred address and draft up 200-300 words describing it, or do you prefer a different process? If not I totally understand, and thanks for reading this.
All the best,
Marcie
Well done! You look really good :) glad to hear tsw isn't stopping you from living life.
ReplyDeleteI'M TOTALLY FREE FROM HERPES VIRUS
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