Friday, November 6, 2015

Day 579 - Day 609 Topical Steroid Withdrawal


(10/1/2015 - 10/31/2015)


Lots of calm this month, but some food flares.  Food is ALWAYS the cause of the big flares.  Always.  The big chunks of days missing just assume the skin stayed the same.   Something to note, I photograph a lot right out of the HOT shower.  This eccacerbates the redness and inflammation for a bit.  Really highlighting the damaged skin.  What's also important to note is after icing and applying makeup, I can appear totally normal most days.  



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I always photograph right after shower.  It accentuates the affected areas.
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I cooked something with dairy and then rubbed my face on accident.


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Makeup does wonders...

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My shoulders are the worst skin I have and they are the only place I applied steroid lotion.

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Food flare.  Right after shower.  SO itchy.  SO painful.
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SAME DAY!  With makeup!  
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My solders just decided to fall the eft apart.  They HURT.

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The next day they're better 

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23 comments:

  1. U should give Dupilumab a try soon hopefully. Changed my life

    ReplyDelete
    Replies
    1. I think all the trials are closed... I really would.

      Delete
  2. Your symptoms are EXACTLY like mine, but mine is not Tsw because I never tried a steroid for the first two years. I'm in my 3rd year of this nightmare. I've found things that did put me in remission. I'm not selling anything I promise, I'm just looking for a support group and you literally have my identical symptoms. I'm on IG julesonajourney but I don't post any flare pics on there. If you want to connect with me maybe we can help each other out. I'm actually doing a juice fast right now, there helped me in the past.

    ReplyDelete
    Replies
    1. http://www.juiceplus.com/+jk14430 Contact me via this site I have a testimony that you would like to see and could possibly help reduce your symptoms.

      Delete
    2. http://www.juiceplus.com/+jk14430 Contact me via this site I have a testimony that you would like to see and could possibly help reduce your symptoms.

      Delete
  3. Jen why you not try immunosupression? I like antihistamine Telfast very help me ;)
    Good luck :)

    ReplyDelete
    Replies
    1. Because of all the other risks... I'm considering it now... But still can't find it in me to risk it

      Delete
    2. At the moment I use Protopic 0,1 %. Before I healed steroid plus
      antifungal cream on my skin. When skin looks it's good I started Protopic. Steel take Telfast 180 mg.
      I can now live a normal life :) I think what will be when I stop use Protopic ;) But at the moment for me the most important is not to use steroids ;)

      Delete
  4. What are good food to eat when you are constipated?
    earache

    ReplyDelete

  5. Wow it's amazing article and good job for spreading post, actually my child has 4 years occurred by eczema, but i should no what will do..please can give suggestion.
    While searching i found one site that full helped me.
    http://www.pediatriconcall.com/fordoctor/Diseases_a_z/article.aspx?artid=271

    ReplyDelete
  6. I wrote and article on eczema as a requirement for my Doctor of Pharmacy degree (PharmD) and it is sitting in my Google Drive doing no good for anyone.

    I would like to share it with others.

    It is 53 pages long, but, one can scroll down through the article to find areas of interest.

    It is annotated with 142 references.

    Currently, I am practicing as a physician assistant in an allergy/asthma/immunology practice (Allergy Partners).

    It seems to be a shame to me that I have not been able to share my findings with others, and I would be happy to see it help someone.

    Please let me know: pdevuyst@allergypartners.com.

    Rick

    ReplyDelete
  7. I wrote and article on eczema as a requirement for my Doctor of Pharmacy degree (PharmD) and it is sitting in my Google Drive doing no good for anyone.

    I would like to share it with others.

    It is 53 pages long, but, one can scroll down through the article to find areas of interest.

    It is annotated with 142 references.

    Currently, I am practicing as a physician assistant in an allergy/asthma/immunology practice (Allergy Partners).

    It seems to be a shame to me that I have not been able to share my findings with others, and I would be happy to see it help someone.

    Please let me know: pdevuyst@allergypartners.com.

    Rick

    ReplyDelete
  8. how to cure eczema, it is important to take good care of your skin. Take warm (not hot!) baths on a regular basis and immediately applying moisturizers afterward will help keep your skin moist. You’ll find more information about this in the bathing and moisturizing section.

    ReplyDelete
  9. Glad you are doing better but sad you aren't doing MORE BETTER :P

    I hope you are at 100% soon. Keeping my fingers crossed!

    ReplyDelete
  10. Relieve eczema symptoms while repairing the skin with scientifically-backed ingredients and a hypoallergenic cream base designed especially for dry, sensitive skin. AOR’s Eczema Cream is a gentle cream with effective natural ingredients shown to help hydrate the skin and target eczema symptoms in a mild cream base. Eczema Cream helps retain moisture in the stratum corneum of the skin and blocks the entry of irritants that dry the skin out. It also helps to reduce inflammation and increase ceramide production, both of which help to reduce symptoms and repair the straum corneum. Natural Sleep Aid

    ReplyDelete
  11. Are you ok Jen? Youve been kinda quiet lately. Hope you are ok. X

    ReplyDelete
  12. Are you still in TSW or have you healed? My flares align with yours and I'm curious how long you ultimately took...

    ReplyDelete
  13. Weird people do comment quite a lot with "cures" or whatnot. Hahah. Always the same. As if people with eczema hasn't tried everything under the sun, but ingesting some juice or adding some scent to a bath must do the trick! Haha. I'm sorry for what you are going through. From what I understand is our best chance of real remission to leave it alone and have the body treat it without any help. I have had a flare now for a few months, not as bad, but I just realised yesterday that if one can go through the initial days (or weeks) without touching, scratching, cleaning... mine does start to fade. Obviously if you start touching, scratching etc you are back to square one. I did this with the skin around my lips. I never ever touch it now. First it will itch like crazy and then days after (maybe a week or two depending on how bad it is) it starts to flake and then the skin will be eczema prone for up to 1-2 yrs which means just touching or light scratching will set it off. It has to dry out that is why all these moisturisers do no good it just keeps it going. Be strong. Stay away from cortison or any other medication or moisturiser. If you can take a week or two off from work and just focus on not touching or scratching. So, yoga, LONG walks, good healthy food, good people, movies etc. And then just wait. See what happens. As soon as you get stressed the eczema gets worse so focus on that. But honestly, the only treatment that worked for me was leaving it alone and Anthroposophic medicine (but you need a good practitioner).

    I know you can do this. Be strong. Some people just have to be stronger in life. But there will be a reason for it. I don't believe in God, but I think this quote is beautiful and so true "God only gives us that which we can handle." Things happen for a reason. BUT THIS WILL PASS. I Promise.

    ReplyDelete
  14. Also, going off steroids just like that is no good, you should come off it slowly. I know some people who have had success but diluting it and then minimising the strength day by day. But since you are so far along I would just wait instead. Don't give up you are almost there!!

    ReplyDelete
  15. I think that you are very brave. You make all those pictures public. And you showed how women, who has eczema, can look. And it is not so bad. You are so beautiful. I am proud of you. You make this disease beatable.
    I have read about eczema symptoms in one article (http://www.online-dermatologist.com/eczema-in-children), but how did you notice that you have a eczema?

    ReplyDelete