This disease is a marathon. Except you never know what mile marker you're at and you didn't prepare before hand. And you're wearing the wrong shoes. Well, for me anyway. I stumbled upon it.
I struggle with staying mentally strong. For the most part, I feel like I've done ok. But I've definitely reached my limit on quite a few occasions and was drug to shore kicking and screaming by some pretty amazing people. I honestly don't know what I would've done without the Facebook support group.
While I'm still struggling, I can say that I've been living. I can slap makeup on-or not- and my skin has been strong despite flares. Until the flare that hit at the end of this month and the beginning of next, I didn't experience ooze.
|Skin was feeling SO calm. VERY little itching at night and was sleeping pretty well through the night.|
|Randomly started acting crazy Easter afternoon.|
|Slapped some makeup on her... and she was fine... until...|
|THE NEXT MORNING... Right after a shower, so it's totally inflamed|
|This guy is about to start giving me hell.|