This disease is a marathon. Except you never know what mile marker you're at and you didn't prepare before hand. And you're wearing the wrong shoes. Well, for me anyway. I stumbled upon it.
I struggle with staying mentally strong. For the most part, I feel like I've done ok. But I've definitely reached my limit on quite a few occasions and was drug to shore kicking and screaming by some pretty amazing people. I honestly don't know what I would've done without the Facebook support group.
While I'm still struggling, I can say that I've been living. I can slap makeup on-or not- and my skin has been strong despite flares. Until the flare that hit at the end of this month and the beginning of next, I didn't experience ooze.
Day 397
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| Skin was feeling SO calm. VERY little itching at night and was sleeping pretty well through the night. |
Day 401
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| Randomly started acting crazy Easter afternoon. |
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| Slapped some makeup on her... and she was fine... until... |
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| THE NEXT MORNING... Right after a shower, so it's totally inflamed |
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| This guy is about to start giving me hell. |
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| Went out with my friend Alan and had an AMAZING time. |
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| No makeup... |
Day 407
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| My back just ITCHES in the shower. |
Day 411
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| Can still put makeup on and look fairly normal |
Day 420
Day 421
Day 423
Day 424
Day 425
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