Saturday, November 1, 2014

Day 233- Day 244: Holy Hell...Horrible Flaring...End of Month 8 Topical Steroid Withdrawal

******** WARNING GRAPHIC PHOTOS *********


Right now, it's the first day of my 9th month and I am ringing it in at 5:41, awake after waking up scratching from useless, dry, think skin on my neck.  It feels like the skin of a rotisserie chicken.   You know, the kind that is so crispy it kind of just breaks off.  That's my skin on my chin, neck, chest, and arms.

The first flare I had was so bad that I really thought that was as far as it would spread.  I never imagined my arms and hands would be getting WORSE in my 8th month.  I never imagined I'd be home bound again with no energy to go out and skin so bad I don't want to face anything.

As far as my emotional state, I'm doing pretty well.  Just letting people help me.  However, it still hurts and really sucks to have this be my face.  To have this be my skin.  It's really awful and upsetting, to I avoid mirrors.  I'm starting to test out supplements and other foods, too.  My gut is still crazy off.  I drank a green drink today that had probiotics in it and my body went haywire!  Sweating, smelling... BLECH.  I have no idea what the heck is still going on.  Maybe bacteria or yeast... Who knows.

Day 234

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Day 235

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My skin is SO dry.  I can't even describe it.  Like nothing I've ever experienced.  My skin has no elasticity.  It wrinkles like I'm 80.


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To look at this in the mirror and know it's you, makes a person pretty bitter and angry.


Day 238

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Day 240

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My arms are getting worse and spreading.  This disease is AWFUL.



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My mother in law brought me flowers... :)


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And she said I looked normal haha


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Day 243
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Stephanie, a TSW mom, got me these slippers with a gift package of amazing and wonderful products to sample!!  Her easy link is below and it is AMAZING stuff.  


AWESOME TSW skin products!! --->>The Home Apothecary 


Day 244

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I look like a baked chicken.


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