Showing posts with label Month 8. Show all posts
Showing posts with label Month 8. Show all posts

Saturday, November 1, 2014

Day 233- Day 244: Holy Hell...Horrible Flaring...End of Month 8 Topical Steroid Withdrawal

******** WARNING GRAPHIC PHOTOS *********


Right now, it's the first day of my 9th month and I am ringing it in at 5:41, awake after waking up scratching from useless, dry, think skin on my neck.  It feels like the skin of a rotisserie chicken.   You know, the kind that is so crispy it kind of just breaks off.  That's my skin on my chin, neck, chest, and arms.

The first flare I had was so bad that I really thought that was as far as it would spread.  I never imagined my arms and hands would be getting WORSE in my 8th month.  I never imagined I'd be home bound again with no energy to go out and skin so bad I don't want to face anything.

As far as my emotional state, I'm doing pretty well.  Just letting people help me.  However, it still hurts and really sucks to have this be my face.  To have this be my skin.  It's really awful and upsetting, to I avoid mirrors.  I'm starting to test out supplements and other foods, too.  My gut is still crazy off.  I drank a green drink today that had probiotics in it and my body went haywire!  Sweating, smelling... BLECH.  I have no idea what the heck is still going on.  Maybe bacteria or yeast... Who knows.

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My skin is SO dry.  I can't even describe it.  Like nothing I've ever experienced.  My skin has no elasticity.  It wrinkles like I'm 80.


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To look at this in the mirror and know it's you, makes a person pretty bitter and angry.


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My arms are getting worse and spreading.  This disease is AWFUL.



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My mother in law brought me flowers... :)


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And she said I looked normal haha


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Day 243
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Stephanie, a TSW mom, got me these slippers with a gift package of amazing and wonderful products to sample!!  Her easy link is below and it is AMAZING stuff.  


AWESOME TSW skin products!! --->>The Home Apothecary 


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I look like a baked chicken.


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Monday, October 20, 2014

Day 233: OOOZE. IS. BACK.

*****WARNING GRAPHIC PHOTOS******






NOOOOOOOOO... The WORST part of TSW a is back.  The sticky, itchy, gross, feeling.  The immobility.  The tearing of my neck skin ever time I look up.  Somehow believed this was all behind me....

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Sunday, October 19, 2014

Day 228-Day 232: Great day! Sun! BATH! Then back to HELL. (Topical Steroid Withdrawal)

I had such a great day.  I felt good, lots of energy, got some sun, skin felt so calm and happy.  I even bathed for the first time in MONTHS!  (It's been washing parts with a washcloth for MONTHS because water feels like battery acid on my effected skin.)  THEN went back to crap and was super depressed and upset.  UGH.  After my good day I had to take ibuprofen which I think may have contributed to my skin literally feeling like it was on FIRE.  But I may never know.  Could've just been TSW.  That's the misery of this disease.  No rhyme or reason.

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Day 230
I took ibuprofen the night before... ?  huh...

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THIS FREAKIN HURTS.
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AND ITCHES.
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The only thing that seems to moisturize is vaseline... but it makes my upper lip weepy... sigh


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Day 232
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